We leave today for our appointment at Shriner's hospital in Chicago. I am finding myself extremely nervous about this. I HATE traveling with her. Not that I don't like taking her - but it's just so stressful traveling with an infant to begin with, and then you add in that whole special equipment (I know, it's just bottles, but still...) thing and it's just so much worse. My husband just doesn't understand. I told him it's not like traveling with us or Monster Boy, where if we forget something we can just run to the store and buy what we need. If I forget or lose her bottles, we can't just go out and buy a new one. Add to that the whole pumping thing, so I have be sure I have all my stuff for that too. There are just so many things to take care of. I hope that she does well on the plane too - it's not like I can give her a pacifier if she gets fussy. I know when I flew with Monster Boy when he was nine months old, that was the easiest plane trip I took. He fell asleep before we even took off and slept the entire flight. I can only hope we get so lucky with her too.
And I am also nervous about her getting approved for the surgery. It's going to be a full day of doctors tomorrow and I know I am probably going to be extremely overwhelmed by all of it. Thank God my husband is going with me so that he can take in what information I can't. And I don't know how long it will take for us to get a decision from them about whether or not they will do her surgery or what other assistance they might provide for us if they don't do it. So much to think about. I just hope that everything goes well.