Saturday, September 12, 2009


So as many of you who have read my earlier posts are aware, September is Craniofacial Acceptance Month. In an effort to bring awareness in our area, (because the lack of support for families of children with these problems is deplorable in my opinion) the last week of August, I sent letters (well, okay emails really) to all our local news stations and our local newspaper. I have not had one single response. I am very disappointed by this. My letter simply requested for them to run a short story, ad or PSA, and they can't even send me a "No thank you"? I mean, I have had NOTHING. It's been three weeks - don't I at least deserve the courtesy of a "We won't be able to accommodate your request" from them?

Here is what I sent (edited to remove our names and other identifying info...)


My name is Mommy Mac. My daughter, Little Miss Sunshine, was born in February with a cleft soft palate, a craniofacial anomaly. While Sunshine's condition does not affect the appearance of her face, as many other craniofacial conditions do, it does lead to other concerns, such as potential hearing loss, speech delays, and it does require surgery to repair. The reason that I am writing to you about this is that our family belongs to the Children's Craniofacial Association, a non-profit group that provides assistance to families of children with all types of craniofacial defects. CCA has designated September as Craniofacial Acceptace Month. In an effort to create recognition of children with craniofacial conditions in the Wichita area (for which there are currently very limited resources), I would like to ask you to run a story or public service announcement, or place an advertisement for us. If you are able to do any of these things, please contact me at XXX-XXX-XXXX, or via email at XXXXXX I look forward to hearing from you.

Mommy Mac

I am finding that I am VERY disappointed by the lack of response...

1 comment:

  1. Wow! That's sad. If you give the news a story about a lost dog they jump on it. I am disappointed too!